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Tag Archive | "Emma Orr"

Benefit to help family of girl with terminal cancer


 

September 22 at Factory Bar and Grill in Muskegon

In September 2015, Emma Orr was a beautiful, happy girl who loved sparkles, and loved being outdoors playing with her kittens and running hot wheels and monster trucks through the dirt. By the end of the month, the sweet second-grader at Beach Elementary was fighting for her life.

Emma was diagnosed with stage 4 high risk Neuroblastoma. The cancer was found in her shoulders, spine, left leg, pelvic bones, in her liver and around her liver. She went into remission in June of 2016. She relapsed with Neuroblastoma in December 2016 and was given a 5 percent chance of surviving. Emma went into remission again in May 2017 but she recently relapsed again in August 2017 with terminal Neuroblastoma. Emma’s survival chance is zero.

Emma lives here in Cedar Springs with her mom and stepdad, Michelle Crawford and Zak Fisk, and brother, Tyler.

Friends and family are pulling together to help the family with a benefit on September 22 at the Factory Bar and Grill, 2037 E. Laketon Avenue, Muskegon, MI 49442, from 6 p.m. to 9:30 p.m. The cost is $10 per person and includes dinner, raffle tickets, live music and silent auction. Donations are also accepted. Contact Michelle via email or text michellecrawford85@gmail.com or by calling 616-915-0794.

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Hometown Happenings


Hometown Happenings articles are a community service for non-profit agencies only. Due to popular demand for placement in this section, we can no longer run all articles. Deadline for articles is Monday at 5 p.m. This is not guaranteed space. Articles will run as space allows. Guaranteed placement is $10, certain restrictions may apply. You now can email your Hometown Happenings to happenings@cedarspringspost.com please include name and phone number for any questions we may have.


Cancer Benefit Sale for Emma Orr

Aug. 31: A Cancer Benefit Sale will be held August 31st to September 4th from 9 am – 6 pm at 3373 Egner, Cedar Springs. 9 year old Emma of Cedar Springs is battling neuroblastoma.100 percent of the proceeds will go to Emma and her family. For questions or to drop off donations for the yard sale please contact Nicole at 616-263-9662 or Robin at 616-696-2798. #35

God’s Kitchen in Cedar Springs

Sept. 5,12,19,26: Join us for dinner every Tuesday. God’s Kitchen – Cedar Springs welcomes families from Northern Kent County and the surrounding area to a Tuesday Evening Meal. No charge – no registration required!  Served from 5:30 – 6:30 pm at the St. John Paul II Parish, 3110 – 17 Mile Rd., Cedar Springs. For more information, call the Church office at 616-696-3904. #35

Actors del Arte Ensemble Auditions

Sept. 5,7,12: Actors del Arte Ensemble of West Michigan will be holding auditions for a Hoot’n & Holler’n Comedy “Welcome to Chicken Scratch.” Sept 5th and 7th and Sept 12th (6-8pm) at Rockford Reformed Church 11 Mile Rd., Rockford. Looking for Adults,Teens and Children. Info 616-874-5264. #35

Help Promote Literacy

Sept. 5,12,14,29: The need is urgent at this time! The Literacy Center of West Michigan has scheduled  information sessions for prospective volunteer tutors. These sessions last one hour. It allows persons interested in becoming volunteer tutors to find out more about the Literacy Center and its programs. At the end of the session there will be a chance to sign up for tutor training. Sessions are Tuesday, September 5th at 6 pm, Tuesday, September 12th at 2 pm, Thursday, September 14th at 6 pm and Friday, September 29th at 10 am. By training people to be tutors, the Center can offer one-on-one reading help to adults asking for assistance in reading or English as a Second Language (ESL). You do not need to speak another language to tutor ESL. The Literacy Center of West Michigan is located at 1120 Monroe Ave., NW, Suite 240, Grand Rapids. Please call 616-459-5151 (ext. 10) or email us at info@literacycenterwm.org to register. #35

Food & Faith Free Family Picnic

Sept. 6: You are invited to a Food & Faith Family Picnic at CS United Methodist Church on Wednesday, September 6th at 6 pm in the Fellowship Hall. FREE family event. Food, games, prizes, for all ages. Contact Sally at 616-788-8225 or office@cedarspringsumc.org. Bring a dish to pass if you wish. #34,35b

Rickerstrong Fundraiser Soccer Game

Sept. 7: A fundraiser Soccer game with Cedar Springs vs Greenville will be held at Cedar Springs High School, 204 E. Muskegon, on Thursday, September 7th. There will also be an aluminum can drive, T-shirt sale and 50/50 raffle. All proceeds go to help the Ricker boys fight their battle with cancer. Read their story on facebook @ Team Rickerstrong. #35

Chicken BBQ and Rummage Sale

Sept. 8,9: Courtland Oakfield United Methodist Church, 10295 Myers Lake Rd., Rockford, is having their annual Chicken BBQ, Rummage and Bake Sale. The rummage and bake sale is Friday, September 8th from 9 am to 4 pm, Saturday, September 9th, from 9 am to 7 pm. BBQ Chicken will be available on Saturday, September 9th from 4 to 7 pm. Half chicken and fixin’s, dine in or carry out. $10.00. All proceeds go toward community programs in 2018. #35,36b

A Different Kind of Selfie at KDL

Sept. 9: Creating Self-Portraits Using Mixed Media. Anyone can create art and what better subject than your own beautiful face! Using a variety of unique materials and a canvas, create your own version of yourself to show the world. For ages 6 and older. September 9th at 1:30 pm at Nelson Township/Sand Lake KDL Branch, 88 Eighth St. #35

10th Anniversary Picnic

Sept. 10: American Legion Post #120 in Rockford will hold its 10th Anniversary Picnic on Sunday, September 10th from 12 noon to 6 pm. Public Welcome! Chicken Dinner, Adults $6.00, kids $2.00. Games, horseshoe tournament, music and prizes. #35

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Thank You


The Crawford family would like to thank everybody who helped and supported with the benefits for Emma Orr. We appreciate everything that has been done to help Emma’s family.

 

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Benefit to help family of third grader with cancer


Beach third grader Emma Orr with her mom, Michelle Crawford, stepdad Zak Fisk, and brother Tyler, 11. Courtesy photo.

Beach third grader Emma Orr with her mom, Michelle Crawford, stepdad Zak Fisk, and brother Tyler, 11. Courtesy photo.

Emma sleeping soundly. Courtesy photo.

Emma sleeping soundly. Courtesy photo.

March 24, 6-8 p.m. at Beach Elementary

By Judy Reed

In September 2015, Emma Orr was a beautiful, happy girl who loved sparkles, and loved being outdoors playing with her kittens and running hot wheels and monster trucks through the dirt. By the end of the month, the sweet second-grader at Beach Elementary was fighting for her life.

Emma lives here in Cedar Springs with her mom and stepdad, Michelle Crawford and Zak Fisk, and brother, Tyler, 11. Michelle related how she first knew something was wrong with Emma.

“Emma woke me up with a serious bloody nose, and as the days followed, she became very pale with high fevers and she all but quit eating. Emma was admitted to Helen DeVos Children’s Hospital September 24, 2015 and a series of tests were taken including an MRI, bone marrow and blood tests. On September 25, 2015, Emma was diagnosed with stage 4 high risk Neuroblastoma. The cancer was found in her shoulders, spine, left leg, pelvic bones, in her liver and around her liver.”

Emma Orr has relapsed with Neuroblastoma in her brain and spine. Courtesy photo.

Emma Orr has relapsed with Neuroblastoma in her brain and spine. Courtesy photo.

Michelle couldn’t believe what she heard. “I was an emotional roller coaster running off of 2-3 hours of sleep. I was in denial at first because Emma was always a healthy child,” she explained.

According to cancer.gov, Neuroblastoma is a disease in which malignant (cancer) cells form in neuroblasts (immature nerve tissue) in the adrenal gland, neck, chest, or spinal cord. In stage 4, it has spread to distant lymph nodes or other parts of the body, and may be hard to cure.

Emma started on treatment immediately. According to Michelle, Emma completed 8 rounds of chemotherapy, a stem cell transplant, four cycles of antibody therapy and 12 rounds of radiation. Her treatments started September 2015 and went until August 2016. On June 10, 2016, she went into remission.

It lasted six months.

On December 12, 2016, Emma, now in third grade, relapsed with Neuroblastoma in her brain and spine. There were four tumors with the main tumor wrapped around blood vessels. Emma was given a 0 percent chance of survival.

“Emma did 17 rounds of radiation in hopes to shrink the tumors and expand her life a little longer,” explained Michelle. She said that radiation did shrink some of the tumors, however it has caused the main tumor to start bleeding. Emma’s survival chance went up slightly to 5 percent, but the bleeding will only increase as time goes on.

The Post asked Michelle how much Emma knows about this, and how is she taking it?

“Emma realizes her chance to survive is small and she understands the bleeding will continue to get worse until the unthinkable happens.”

The family is making the most of and treasuring their time together with Emma. “Emma has dropped out of school to spend more time with family as time is ticking away,” said Michelle. “It’s been a very emotional experience for all family members involved and we are all just trying to enjoy having Emma with us as long as possible.”

Recently, they attended Disney World together and made many happy memories, through a trip made possible by the Make-A-Wish foundation. “She loved every moment of it. Emma got to meet almost every princess possible and she loved the roller coasters!”

Emma’s mom said that insurance has covered about 90 percent of Emma’s medical treatments and some of the prescriptions. But they still need some financial support. There is a gofundme page set up at http://tinyurl.com/emmaorr for those who wish to donate.

Also, the Beach Elementary PTO is holding a special 25-cent sale fundraiser for Emma on Friday evening, March 24, from 6-8 p.m. Come join in a fun night of shopping to help raise money for Emma and her family. Booths will be set up with local direct sales consultants. Two raffle prizes will be available from each booth, each valued at a minimum of $25. Purchase 25-cent raffle tickets throughout the event and drop your tickets into the cup next to the raffle prize you wish to win. To make it even better, for every $10 spent at the booths, you will earn Golden Tickets. Golden Tickets get placed into a separate raffle drawing. One lucky winner will be announced at the end of the event. That lucky winner will receive a raffle prize valued at a minimum of $25 from each of the booths present. There will also be a custom Fight for Emma “No one fights alone” bracelet at the Plunder Design booth. Be sure to check that out.

To follow Emma’s fight, you can follow the Fight for Emma facebook page at https://www.facebook.com/groups/732117343587400/.

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Fundraisers for Rickers and Emma Orr


 

See scheduled fundraisers below for children in our community suffering with cancer: teen brothers Brison and Preston Ricker, and second grader Emma Orr. Brison was diagnosed a year ago with an inoperable brain tumor called DIPG, and his brother Preston was diagnosed with thyroid cancer in December. Emma was diagnosed with neuroblastoma in the fall of 2015, and relapsed six months later.

Rickerstrong can drive

March 13: Rickerstrong can drive will be held Monday, March 13, at 5:30 p.m. at Meijer in Cedar Springs. It was rescheduled from Monday, March 6, due to the power outage.

25 cent event for Emma Orr

March 24: Come join the Beach elementary PTO in a fun night of shopping to help one of our students battling cancer for the second time. Booths will be set up with local direct sales consultants. Two raffle prizes will be available from each booth, each valued at a minimum of $25. Purchase 25-cent raffle tickets throughout the event and drop your tickets into the cup next to the raffle prize you wish to win. To make it even better, for every $10 spent at the booths, you will earn Golden Tickets. Golden Tickets get placed into a separate raffle drawing. One lucky winner will be announced at the end of the event. That lucky winner will receive a raffle prize valued at a minimum of $25 from EACH of the booths present. WOW! There will also be a custom Fight for Emma “No one fights alone” bracelet at the Plunder Design booth. Be sure to check that out.

Benefit BBQ dinner for Ricker family

March 25: Come out to the Peppermill Grill, 8 South Squires St., in Rockford, from 3-7 p.m. to support the Ricker brothers as they fight two separate cancers. $10 a plate will get you either a pulled pork BBQ or two hot dogs with homemade macaroni and cheese, baked beans and a beverage. All of the proceeds will go to the Ricker family! Carry out is also welcomed. T-shirts and wrist bands will be available for purchase. There will also be raffle tickets for basket drawings.

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