Posted on 18 August 2016.
Fundraiser Aug. 23 to help with treatments
Brison Ricker, 15, was on the Varsity soccer team at Cedar Springs High School last year, before being diagnosed with a brain tumor.
By Judy Reed
The greater Cedar Springs community and beyond has wrapped its arms around the family of a local teen with a rare brain tumor, and the alternative cancer treatment they are working so hard to help raise funds for is showing signs of working—something that conventional cancer treatment did not do. In fact, the latest MRI on 15-year-old Brison Ricker shows that the tumor has shrunk to 1/3 the size it was previously.
It’s definitely a miracle—especially when you find out that Brison’s parents—Brian and Kim Ricker, of Nelson Township, were told less than two months ago by their conventional oncologist to take Brison home and call in hospice because he didn’t have long to live.
Before symptoms began last fall, Brison was a happy, well-liked and athletic teen, who loved riding dirt bikes with his younger brother Preston, and playing soccer. According to Kim, Brison raced motocross and supercross, and came in second place in the state for the two classes he raced in. He also was on the Varsity soccer team as a freshman, and voted offensive player of the year.
His symptoms started around Thanksgiving time with dizziness. “He’s extremely active, so I told him to drink enough water, not to get dehydrated,” explained Kim. The symptoms continued and progressed to blurred vision and seeing double, so she made an appointment with their pediatrician after the first of the year. “They said it was an eye issue and sent us to an eye doctor, who prescribed him glasses. “We got those and they didn’t work,” said Kim. “I had a feeling they wouldn’t. I suspected it was something major.”
Kim asked the pediatrician to schedule an MRI to see what was going on, but he didn’t think it was anything major. “I had to fight with him about it. I finally said I’m taking him to the ER to get an MRI then, and he said o.k.” Brison had the MRI and they got the diagnosis on January 22: the MRI showed a rare and deadly childhood brain tumor called Diffuse Intrinsic Pontine glioma (DIPG), which is nearly always fatal and lacks an effective treatment, according to Stanford University.
According to a news article from Stanford’s medicine news, DIPG affects 200-400 school-aged children in the United States each year and has a five-year survival rate of less than 1 percent; half of patients die within nine months of diagnosis. Radiation gives only a temporary reprieve from the tumor’s growth. In addition, it is inoperable. It grows through the brain stem, where breathing and heartbeat are controlled, “with the healthy and diseased cells tangled like two colors of wool knitted together,” said Michelle Monje, MD, PhD, assistant professor of neurology at Stanford.
Brison Ricker (seated) with Dad (Brian), brother Preston, and Mom (Kim).
The news of Brison’s tumor was devastating for the family. “There’s not words to describe how it felt. We were horrified. Our whole world was crashing down,” shared Kim. She said she also questioned God about it. But Brison’s faith and the support of family and friends helped keep them steady. “He has handled it like a champ. We get strength from him. He has a very strong faith, as do we. And, as soon as we found out, our room was filled with friends from church who came to pray. It helped our focus to be on God’s word and not what the doctors are telling us; to focus on God’s promises and not the diagnosis,” explained Kim.
A Gofundme page was set up for donations, and Team Brison (you can find them on Facebook) began putting together numerous fundraising events to help the family. And people began to pray.
Brison first underwent radiation, and did several alternative treatments at home to help fight the cancer, including eating a strict, healthy, organic diet. Kim said they wanted to go to the Burzynski clinic in Texas in March, when Brison’s radiation was done, because they offered an alternative treatment that had had some success with patients. But she said that the oncologist recommended against it, because he said he had seen people do that and waste their money.
The cost for the first month of treatment down there would be $30,000, and it would be a minimum of $17,000 per month after that. None of it would be covered by insurance. Not to mention the loss of income they would suffer. Faced with that and the fact that the oncologist recommended against it, they didn’t go.
But Brison continued to deteriorate. He lost 25 pounds, and his liver was under stress. The steroids he was on for inflammation broke down his muscle and skin and contributed to fatigue. By the end of April, he needed help to stand, sit, and walk. And his tumor had grown 6mm bigger, and there was swelling in his brain. He continued on steroids and the alternative treatments he was receiving locally.
On June 18, Brison went to the ER because his symptoms were progressing, and had another MRI. The news was devastating—his tumor had doubled in size from just six weeks before and was spreading to other parts of his brain. “The doctors say there are no clinical trials available anywhere for him and there is nothing left that they can do for him, and sent us home to cherish the precious time we have together. They suggested that we call Hospice and said at the rate the tumor is growing they believe his time is very limited,” wrote Kim in a Gofundme update on June 19.
“We went home and called the Burzynski Clinic right away,” said Kim. She researched a few other clinics, but the Burzynksi Clinic was the only one that had any success with treating that type of tumor. And Kim was able to talk with the mother of a 14-year-old that had been treated there, which helped them make their decision. “We prayed about it and felt this is where God was leading us,” she wrote. Additional gene-targeting meds were going to add another $40,000 to the cost, and they didn’t know how they were going to be able to keep the treatments going, but they trusted God and went.
They originally thought they would be there a month, but came back a bit sooner. Some additional new meds the clinic wanted to start him on wouldn’t have been covered there, but the oncologist here agreed to work with them and offered to give them to Brison here, which meant they would be covered by insurance. They still, however, have thousands and thousands of dollars in expenses to be met for other meds.
On Thursday, August 8, they received some amazing news: not only was the tumor one-third the size it was, but it was dying from the inside out. His oncologist here was surprised. “He said he’d never seen any results like this, that basically we were in a gray area of medicine from a regular oncologist’s point of view, because they hadn’t seen this combination of treatments before,” said Kim.
She also spoke with Dr. Burzynski this week, and he wants to continue with the treatment and get an MRI in four weeks. “There is some controversy between the doctors on how treatment will go moving forward but we’ll work it out,” she said. “The main thing is Brison had great results. He is tired and worn, but holding steady. Steady is good. If he was not on this treatment, he would not be with us.”
Kim said that the family has been overwhelmed with the support that they have received, even from people they don’t know. Brison is in awe of it all, especially the little notes or gifts he gets from people. She hopes people will continue to show Brison how much they care about him. “He thinks those gifts and notes are pretty awesome,” she said.
One of the ways their faith in God has helped them through this, is to see how it has affected other people. “A ton of people have said how our faith has strengthened them. It’s amazing to see how through all this we are touching and encouraging people and making their faith stronger,” remarked Kim.
While Brison received good news about his tumor, he is not out of the woods and will need more treatment, which means continuing expenses for the family, and they can only continue the treatments with your help. Another fundraiser has been set for August 23 at Cedar Springs High School at 6:30 p.m. All proceeds will go to benefit Brison. Speakers are Tracey Casey-Arnold, founder/CEO of W.I.T. Wellness Consulting, founder of WIT Ministry and Whatever it Takes Radio Network; and Matt Lehr, former NFL football player, NPC Super Heavy Weight and GASP athlete, and NPC Texas Judge. Arnold will speak about using faith to help win in life; Lehr will speak about overcoming adversities. Tickets are $25 each, with the option to donate more. They ask that you please purchase tickets ahead of time at: http://www.eventbrite.com/e/brison-ricker-fundraiser-event-with-tracey-arnold-and-matt-lehr-tickets-26959235800. Or go to eventbrite.com and search for Brison Ricker.
For info on this and other fundraisers for Brison, search for the Team Brison page on Facebook.
To donate directly to Brison, visit https://www.gofundme.com/brisonricker or send a check to Brison Ricker, 5370 Dio Dr., Cedar Springs, MI 49319.